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Table 3 Response to Addiction Recovery (R2AR) development—stakeholder input process

From: Development of an addiction recovery patient-reported outcome measure: Response to Addiction Recovery (R2AR)

Task

Description

Sample and Honoraria

N

Initial Item Review

    1. Stakeholder survey (online)

Identify items important to recovery, assign recovery domain and stage of recovery. Each participant reviewed a randomly selected 28 items of the 57 items, to reduce participant burden

PWLE, BH/medical/social service providers, researchers, recovery coaches/peers, family/friends of people in recovery. Lottery for one of four $50 gift cards

N = 330

    2. PWLE interviews (phone or video)

Determine if items captured recovery experiences, missing concepts, irrelevant items, user experience

PWLE survey respondents who agreed to be contacted (N = 30); snowball method (N = 2). $50 gift card

N = 8

Cognitive Testing

    3. PWLE interviews (phone)

Complete revised R2AR, provide feedback on meaning, usability, usefulness, user experience

PWLE who completed initial interview and willing to be interviewed. $50 gift card

N = 8

    4. BH provider (in-person or email)

Assess whether items captured range of recovery progress and stage, item clarity and meaning, Likert scale, anchor questions

Convenience sample of BH providers. $50 gift card (offered but none accepted)

N = 5

    5. Expert review (in-person)

Assess anchor items, Likert scale, items and domains

Authors, researchers, and clinical colleagues at BH-focused FQHC

N = 6

    6. Clinical focus group (in-person)

Determine if items were important to clinical practice, appropriate for OUD/MOUD population, viable for clinical setting

Nurse care managers who support people receiving MOUD at BH-focused FQHC. $25 gift card

N = 6

    7. Client focus group (in-person)

Meaning of items, comprehension, relevancy to own recovery experience. Viability of items, anchors and Likert scales for measuring recovery

Individuals treated for addiction at BH-focused FQHC. $25 gift card + lunch

N = 25

    8. Client interviews (in-person)

Review items/scale/anchors, discuss meaning, thought process for response

Individuals treated for addiction at BH-focused FQHC, recruited for focus groups but did not participate due to capacity. $25 gift card

N = 4

  1. Abbreviations: BH behavioral health, FQHC federally-qualitied health center, MOUD medications for opioid use disorder, OUD opioid use disorder, PWLE people with lived experience